My best friend and kindred spirit, Siren, is sick. Not just "feeling a little under the weather" sick, or even Swine Flu sick. Siren is 2 tumors in her head sick. A week after having stroke like symptoms, we still don't really know what is going on. At first the doctors thought she was having a TIA stroke, then they ruled that out. Then they thought she had a seizure, but then crossed that off the list as well. After an MRI, they diagnosed her with having 2 tumors in her brain known as Cavernoma. They are bleeding. That was on Monday. It is now Friday and her doctor hasn't returned her calls or given her any follow-up information. She is now spending the day looking for a new neurologist.
I am very worried. Worrying is one of the things I do best. I just can't stop and I'm having a hard time thinking about anything else and staying focused on things I have to do, like work. Instead I am searching the web, trying to gather as much info as possible to try to help her find a new doctor. She's supposed to be coming for a visit in two weeks. If she is still well enough to travel, I will be taking her to Minnesota to go to the Mayo Clinic. It is apparently the best neurological center in the United States and has the most experience treating Cavernomas.
Siren is 29, has 3 kids under the age of 7, and except for one friend in Austin, she is completely alone. I so badly want to fly down there and be with her, but at almost $500 for a plane ticket, I just can't afford it. And I hate not being able to do anything for her. Have I mentioned that I'm worried?
You really have to wonder at the medical professions ability to return a simple phone call.
As sick as Siren is, they must know any news at all would have been better than none.
I guess The Bachman needs to his duty and give ya some doggy love.
I hope your friend is able to come visit you - I'm sure it will perk her up some.
Shame on that doctor for keeping her in the dark!!! This is so awful to hear...She is fortunate to have a friend like you to step in and help her navigate this scary time.
Stay strong...she needs you :-)
I will pray for Siren!!! Try not to worry to much...
I'm so sorry for all this horrible news. =(. I'll put her and you in my prayers.
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